Facts About Aspergers and Interview with Julie Clark, author of Asperger’s in PINK

Asperger's in PINK is on
Facebook

“Asperger’s in PINK" is going to be both lighthouse and life raft for parents, giving them something to aim for and the way to get there. Parents of an AS child (whether girl or boy) who are trying to procure a diagnosis or who have a diagnosis but don’t know what to do next, Ms. Clark has provided you with a map. … Thanks to books like this and the parents and professionals who take the time to read them, many more little Aspergirls will have the future they deserve." From the Foreword by Rudy Simone, Asperger's self-advocate and author of Aspergirls and Asperger's on the Job.

Asperger's On the Job
has a forward by
Temple Grandin

A quote from the star of Asperger’s in PINK, Kristina, sets the tone of the book: “I feel like any other ordinary kid and I want to be respected like one.” In her section, Before You Begin, Clark writes about Aspergers (AS):” …both males and females share certain traits…lack of eye contact, inadequate social ability, strict adherence to routine, sensory integration difficulties, lack of empathy, intense interest in a limited number of subjects, rigidity, and a literal way of thinking.” However many people feel that this neurological condition does not have to be cured but has to be accommodated and respected.

Asperger's Syndrome is an Autism Spectrum Disorder (ASD). It is only in 1994 that Asperger’s Syndrome was recognized in the United States and added to the DSM-IV.

In The Pattern of Abilities and Development of Girls with Asperger’s Syndrome by Dr. Tony Attwood - September 1999  we learn: “The boy to girl ratio for referrals for a diagnostic assessment is about ten boys to one girl. However, the evidence indicates that the actual ratio of diagnosed children is 4 boys to one girl (this is the same ratio as occurs with classic autism). Why are so few girls referred for a diagnosis? In general, boys tend to have a greater expression of social deficits, whereas girls tend to be relatively more able in social play and have a more even profile of social skills. Girls seem to be more able to follow social actions by delayed imitation because they observe other children and copy them, perhaps masking the symptoms of Asperger's Syndrome.”

Today in preparation for our tweetchat on The Coffee Klatch (TCK) : http://tweetchat.com/room/tck  Feb. 21st, 9am EST, Julie Clark, artist, mom of a daughter with Asperger’s and author of Asperger’s in PINK kindly answered a few questions.

1. What made you decide to write Asperger’s in PINK?

Julie Clark author is on Twitter

When Kristina was diagnosed, there wasn't very much out there regarding Asperger's - especially anything relating to having (or being) a daughter with it. I wanted to provide a voice for girls on the spectrum, and allowed our story to be that voice, as well as let others learn from our experiences. If our story prompts others to share theirs - to get the conversation going - I'd be thrilled.

2. Who was your target audience?

The hope is that the book would speak to families, to let them know there are other families out there who are walking the same path as they are. They may feel alone, but they are not alone. School professionals and extended family are another audience I'm trying to reach. By personalizing the journey, the hope is that they will gain a view into the world of families like ours, and know that many of us really are trying to do the best by our kids. But we also could use loving, (patient) guidance, and acceptance along the way.

3. How has your book been received?
There are many who have been so kind, and related their own stories to me. Some have expressed that it has been a huge help to know there are other moms (and dads) out there who are walking the same path, even if the steps don't exactly line up. But not everyone relates to the book, and they've made that pretty well known, and that is ok. We each have our own stories, right? What is important is that we choose to learn from each other.

4. Any comments/reviews that made your writing effort worthwhile?
At my first book signing, I had a mom come up, with tears in her eyes. I can't begin to tell you how humbled and touched I was at that moment. As I mentioned, there are those who have quite a differing opinion of what I present in the book. But meeting that mom reminded me of why I wrote the book in the first place, and reenergized me as to the mission behind the book - to increase understanding and awareness of girls on the autism spectrum, and to turn up the volume of the "pink end" of it.

5. Do you find that girls with Asperger’s now have more support in schools than when Kristina started?
That's hard to say. From a purely analytical perspective, knowledge of Asperger's has increased dramatically since then, but the truth is, it is still often misunderstood. So, overall, I'd like to say yes, but I do not think that applies everywhere.

Dr. Tony Atwood in “The Pattern of Abilities and Development of Girls with Asperger’s Syndrome” found that: “Girls are more able to verbalize their emotions and less likely to use physically aggressive acts in response to negative emotions such as confusion, frustration and anger. We do not know whether this is a cultural or constitutional characteristic but we recognize that children who are aggressive are more likely to be referred for a diagnostic assessment to determine whether the behavior is due to a specific developmental disorder and for advice on behavior management. Hence boys with Asperger’s Syndrome are more often referred to a psychologists or psychiatrist because their aggression has become a concern for their parents or schoolteacher.”

Also Dr. Atwood, in his paper about girls with Asperger's, noted that girls "are more motivated to learn and quicker to understand key concepts in comparison to boys with Asperger's Syndrome of equivalent intellectual ability." As such, he predicted that girls would fare better in the long run, if they're properly diagnosed.

There we have it – the magic words- ‘properly diagnosed', what Julie Clark and countless other parents are working so hard to receive. Julie says of the official diagnosis: “The combination lock opened, the fog lifted, darkness no longer enveloped us. .. At last, we knew what we needed to know to help Kristina grow."

We hope Julie’s book, our posts and The Coffee Klatch sessions will motivate parents to continue their struggle to but a name to their child’s unique behaviors and open the eyes and heart of others to accept and respect all individuals. As Julie Clark wrote: " What I am saying is that "the village" contributes to the growth or stagnation of all of us."

Purchase Asperger's in Pink at Future Horizons
Purchase Asperger's On the Job at Futrue Horizons

Where to connect with Julie Clark:
*JulieClarkArt Artisan Studio at ArtFire
*JulieClarkArt.blogspot.com
*Asperger's in Pink on Facebook
*I'm on twitter
*Julie Clark Art, artisan studio on Facebook

Related Posts:

*Asperger's in PINK by Julie Clark ~ Book Review 

*Asperger's On the Job by Rudy Simone ~ A Review 

*Three Book Reviews Dealing With Guides For Kids With ASD

*Shonda Schilling's Frank Account of Son With Asperger's Syndrome

*Jodi Picoult's House Rules

Asperger's in Pink by Julie Clark ~ Book Review

Review by Gavin Bollard

“One of the hardest things about raising a child with Asperger’s is the feeling that our daughter has something invisible. … It’s the old, old story of judging by appearance. It’s the old, old ending, of the cover not fully representing the book,” writes Julie Clark in Asperger's in Pink ~ A Mother and Daughter Guidebook for Raising (or being) a Girl with Asperger’s.

Twitter

Julie Clark, a writer, an artist, and a mom explains in detail the adaptations, alterations and perseverance needed to win their daily battles in raising Kristina with Asperger’s Syndrome (AS). These battles were sometimes with their immediate family, their friends, medical and school systems and sometimes with  Kristina or even with their own insecurities.

Julie Clark will be joining Hartley Steiner and Lorna d'Entremont on the The Coffee Klatch ~ Twitter tweetchat Feb. 21 at 9am EST. Join us please!

The foreword by Rudy Simone, Asperger's self-advocate and author of Aspergirls and Asperger's on the Job, applauds Kristina’s mom for her tenacity in enlisting the aid of professionals, in documenting the progress of her child’s education and care and most importantly in getting the all important diagnosis.

Part of the title of this book is “A Mother and Daughter Guidebook for Raising (or being) a Girl with Asperger’s.” Julie Clark walks us through the lengthy process of getting the proper diagnosis and blames this partly on the fact that her child is a girl. In her forward, Rudy Simone also upholds the fact that the female gender often goes undiagnosed and even receives multiple misdiagnoses. This results in not having access to the proper care and support.

A delayed diagnosis leaves the family struggling to prove that their child’s unique behavior is not due to bad parenting or willful misbehaving. Clark points out that one of the most difficult aspects of their journey has been the feeling of being misunderstood and under a microscope as a family unit.

Clark advises, in a Pink Pearl to Everyone, to throw out the cookie cutter! Do not expect girls with AS to mimic boys with AS. For that matter, don’t expect girls with AS to mimic their neurotypical counterparts…”

Even though this book fills the need for a resource for families and educators of girls with Asperger’s, it is also very beneficial for all parents of a special needs child because many aspects of the Clark’s family struggle apply to all. These parents will learn from Kristina's parents as they sift through the EAS (Educational Alphabet Soup) IEP, 504, PAT, FAPE, CSE, OT…

Unfortunately her dealings with the educational system, except for a few caring, capable individuals, make me shudder. Clark is Thankful for: “A 5th grade teacher, who taught more, gave more, than anyone else, and who has bestowed a lifelong positive impact on one little, super-special girl-and her parents.”

We read that as her daughter gets older the academic and special services component of school was solid but the social component crumbled as the days of knowing Kristina was a bit different had unfortunately begun. Like for so many of our special needs children, Clark says it so simply:“ Watching your daughter bloom in October, only to wilt in Spring in unbearable.”

I agree with the author on the topic of bullying. The emotional bullying girls can dish out is rather nasty and long lasting; more psychological than physical. The wish of many parents is for their child to find a true friend like Emma was for Kristina.

You will easily relate to Julie’s explanation on how they needed lots of perseverance, patience and prayers to deal with friendships, play dates, invitations to parties, school group projects, playground and lunch time friends and family outings and vacations. Follow the Clarks, armed with Social Stories in pockets, trying to interest Kristina in extracurricular activities to learn to interact with peers.

The chapter, Holding the Marriage Together, will make you realize how important it is to be a helpmate to your spouse, to make time to be together and to be a team dealing with the added stressors of a special needs child.

Interview with Danett Schott
S-O-S for Parents

After having read Asperger’s in PINK, you should be a stronger person, a better advocate armed with more knowledge and hope. A person, like Julie Clark, with a light at the end of your tunnel and with no regrets because you have figured out what is really important in life and with all your being you work to make this happen:  “I so hope, with all my being, that she will grow up to be happy, healthy, successful and loved by others.”

Asperger’s in PINK is divided in four sections entitled, The Diagnostic Process, School, Community and Day to Day. Each section has short chapters that all begin with an interesting quote by Kristina and end with Julie’s Pink Peals for various people like caregivers, her husband, the couple, the extended family and other moms. Then she has what she is Thankful for in regards to the topic she covered in the chapter. The last part of each chapter is entitled Inside the Bubble, a moving story about an event that her family experienced. I especially loved Holidays Are Hard where she tells us the difficulties of Halloween.

The comprehensive index allows parents to use this book, after their first reading, as a resource that they can return to when they need guidance or simply for a ‘misery enjoys company’ read! Also this book makes a  great gift for family members, friends and educators so that finally you can all be on the same page!

Asperger's in PINK by Julie Clark

Binding: Paperback

Pages: 273

Price: $14.95

Purchase: Future Horizons

Where to connect with Julie Clark:
JulieClarkArt Artisan Studio at ArtFire
JulieClarkArt.blogspot.com
Asperger's in Pink on Facebook
Twitter 
Julie Clark Art, artisan studio on Facebook

Related Posts:
*Facts About Aspergers and Interview with Julie Clark, author of Asperger’s in PINK
*Asperger's On the Job by Rudy Simone ~ Book  Review

*Shonda Schilling's Frank Account of Son With Asperger's Syndrome

*Jodi Picoult's House Rules